Showing posts with label gratitude. Show all posts
Showing posts with label gratitude. Show all posts

Saturday, September 28, 2013

Reframing Fear






This post is a part of the Summit Blog Tour, which leads up to the Soul*Full Summit hosted by Catherine Just. I’m thrilled to be a part of an event that empowers entrepreneurs, artists and creatives to take action toward their dreams while helping create more opportunities for people with Down syndrome. You can join the movement by signing up for the Summit HERE.

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The day before Ben and I left for Los Angeles for his big surgery I got together with some friends for a little blessing ritual. They held me physically and emotionally as we talked about what was coming. We sang, they gave me blessings, they hugged me, and sent me on my way.

All of the blessings were powerful and comforting. But there was one I called upon more than the others throughout our time in LA. I think I didn’t actually really believe it at first, but I kept it like a mantra, in the back of my head, and reflected on it whenever I needed a reminder.

“Please remember not to worry about Ben. There is nothing more focused and clear-minded than a patient with the mission to get well. The way is crystal clear, the path laid out. So, remember to allow him to heal himself and love him and offer support by continuing to love yourself...”

Susan’s message caused me to take a step back from Ben and do some observing. She was so, so right. My moments of stepping into his personal space with worry or fussing always caused him to push me right back out. He knew what he needed to get himself up and out of the hospital. He was very focused. And what he needed from me was to trust him, love him, and love myself.

Ben is doing so well these days, moving with ease, walking longer and farther, looking beautiful in his new tall, straight self. (We go back to LA for his 6-week follow up appointment on Monday and I’m sure he’ll get rave reviews.) I’m not worrying about his health these days. Now I have time to worry about everything else!

So I was a little surprised when Susan’s mantra came to me as I felt the fear rushing in around parenting my teens. I realized that what starts as fear becomes a tug-of-war between trust and control.  

F.E.A.R. Fear of everyone falling off the cliff if I don’t make sure they are all safe and sound. Fear of a car crash if they aren’t paying attention. Fear of lives or limbs lost because I haven’t done everything in my power to avert that disaster. Fear of all the things out of my control, heck, out of their control, that could happen.

If I frame it as “What we want for them,” it’s a bit more positive: We want them to be safe. We want them to thrive. We want them to be successful at whatever it is that they decide they want to do with themselves. We want them to be happy. We want them to find meaningful work. We want them to be able to be independent, live out in the world on their own and pay for the needs and luxuries that they choose to have. We want them to have confidence in their own abilities to move forward, to make life choices, to deal with the challenging situations, decisions and people that they will most definitely encounter. We want them to be good, responsible people, to have fulfilling lives.

I don’t need to conduct a poll to know that my fears are common ones. And my fears are just the contrasts of those wants: What if they aren’t successful? What if they never can leave home because they don’t make enough money to pay for a car, gas, apartment, food? What if they can’t find meaningful work, whether because they don’t make smart choices or because they can’t find their core? What if they don’t have self-confidence? What if they crumble or storm out every time life gets hard? What if they are unhappy and unfulfilled?

I can see what those fears are: my own personal anxieties talking loud and clear. When I look at my boys I see three good, strong, amazing people. Three smart, creative, and handsome guys. (I could go on...but I'll spare you ;) I know that how Mark and I have parented them has made an impact on them yesterday, today and tomorrow. I don’t know what their time frame is, but in moments of clarity I’m not afraid of them not finding their true north. Even if today they don’t know for sure what they want to do with themselves, can’t picture themselves as adults, or don’t behave like adults, that is just today while they are still becoming.

I also know: Shit happens. Look back at most of the posts in this blog. Of course I know that. You would think that I’ve learned that living in a place of fear does absolutely nothing to avert disaster. AND at the same time it doesn’t impact the future either. FEAR just makes you unhappy in the moment. It just takes away the joy and gratitude you could be feeling right now. It clouds your perception of your life so that all you see is this distant frightening Future...and Now is actually very dark. You can’t see it.

Parenting teens seems to bring this all rushing up to the surface. I think that parenting teens engages this fear in a bigger way than even parenting small, seemingly more fragile children. The teens are on the verge. The verge of blooming, launching themselves into the world. And as they start to spread their wings we feel our own insecurities aroused. Are they prepared? Are they smart enough? Are they going to handle it all well? Will they survive? Have we done enough?

It isn’t all about reflection, but it is about where our boundaries lie. Where I end and they begin…that line is so important in our relationship because when I can see it and hold it, I am honoring them as individuals.

The worst thing I do is step over the boundaries into their space and share my fears with them. It’s the worst thing because all it does is show them that I lack trust. They think it’s a lack of trust in them, and even I think it is for a while. But the longer I look at the fear, the more I realize that it’s actually my own lack of grounding in right now. I am someone who spends too much energy envisioning an apocalyptic future. A terrible, terrifying future.

Parenting teens well requires setting aside my own fears and worries and believing in “the patient” and that he will know what he needs, what he wants, and how to get it. Parenting teens well means sitting with the discomfort of today, including sitting with their discomfort when they don’t know what they want or how to get from point A (today) to point G (their future) and not doing anything about it. It is a tug-of-war between being content with not knowing and doing some planning, and being content with not knowing and not doing any planning!

The discomfort causes me to want to soothe it all away. And Soothing is doing so I start to work hard to come up with a plan, a healing path, an idea or list of ideas, a schedule. What I really need to do is be quiet and patient and see what comes. To trust in my kid to figure himself out.

So today I’m going to put my fears aside. I’m going to trust my sons to get themselves where they need to get. I’m going to keep on loving them, supporting them and loving myself. And, I'm going to focus on today and all the beauty each of my young men embodies. It’s a much sweeter place to be.


Thursday, August 29, 2013

Gratitude list



I learned long ago that there is a huge silver lining to our challenging situation. Here is my gratitude list for this trip:

Modern Medicine: We originally came to Shriners (Philadelphia) for their progressive surgical techniques for scoliosis patients. We had two goals: keep Ben's spine flexible and let it grow. We were fortunate to be selected for their care, their expertise and their mission. Dr. Betz (who innovated these techniques) and Dr. Cahill who was Ben’s first surgeon in Philly started us out on a great road. We accomplished the second of our goals largely due to Dr. Cahill’s belief in and skill with these techniques. When we met Dr. Cho in Los Angeles last November we were immediately impressed with him and felt confident that moving Ben to his care would be a positive choice. His skill, confidence, and vibrant demeanor (ok, he’s got a great smile, a great sense of humor, is an excellent communicator, and a snappy dresser) convinced us to move to the LA hospital. Being closer to home both for the pre/post-op visits and for the surgeries has made a huge difference for us. So glad to be in the care of such excellent doctors!

The Kindness of Strangers: While I was planning for this trip I was trying to find a good place to stay while Ben was in the hospital. Near the hospital but in a safe neighborhood. Affordable. Comfortable. Homey, if possible. I kept coming up short. The hospital is in a not so great neighborhood and I couldn’t find a solution that felt like a good fit and was something we could afford. That was when my friends Barbara and Madeleine told me to talk to Paula, someone I know peripherally from my days in LA teaching music at Sholem, a secular Jewish community Sunday school, and who is a friend of theirs in Sebastopol. “Ask Paula,” they both said. “She still knows lots of people in LA.” So I did. Paula put out an email one Sunday to the Sholem community and by Monday I had a response from Susan and Marc Sazer inviting me to stay in their guest room in the Larchmont neighborhood of LA. We spoke and I accepted and…a friendship was born. I am BEYOND grateful for their openheartedness in taking me in. What I got from staying with them was not only a convenient and comfortable place to stay within 10 minutes easy drive to the hospital, but, a loving, warm, and beautiful home to return to every night with friends who wanted to know how I was doing and how Ben was doing. Their dog, Goldie, was my happy companion during the three days they were gone (setting their daughter up at Sonoma State for her freshman year, happy coincidence!), greeting me the way Corgis do, so delighted to usher me through the house to my little guest cottage in the back. Goldie made me smile and kept me company. Susan gave me hugs and a welcome ear to hear of the day’s ups and downs, and Marc uncorked some great wine and grilled up some tasty lamb chops on my last night with them. I deeply believe that what you put out into the universe comes back to you…and I told Susan that they are another link in our chain. (And who could argue with the lovely coincidence of another Susan and Mark/c?)

The Kindness (and tolerance) of Relatives: My gratitude list would not be complete without a full blown kiss and hug and thank you to my aunt and uncle, Adele and Sheldon Miller. They took us in (even a couple days earlier than expected) for over a week and tried to take care of our every need (though we sometimes said, “No, Me Do It!” like toddlers). They wanted nothing more than for us to be happy and healing in their quiet and luxurious home. We got nightly runs for frozen yogurt or pizza, daily runs to Sprouts or Costco. The most comfortable beds were ours for the asking. Wide screen tv. Wifi. We spread out in every bathroom and extra bedroom. And finally, yesterday we got to jump (or wade cautiously) into their sparkling blue swimming pool (Dr. Cho gave Ben the go-ahead for that Tuesday). We enjoyed their stories, love, hugs, and tasty dinners. Thank you thank you thank you, Sheldon and Adele.

Harry Miller: While we were in LA Harry held down the fort. This is not the first time he’s stayed home while we were in LA, but it was the longest time and he was alone for most of it. Not only did he take care of himself and the whole house and all of our critters, but he did it while starting a job at the Sixth Street Playhouse making props for Spamalot, getting hired to be assistant stage manager for that show, and starting a new semester of classes at Santa Rosa Junior College. We’re so grateful to you, Harry, for doing all that for our family, and so proud of you, too.

Toby Miller: Toby was away at camp until moments before Ben and I went to LA for his surgery. We saw Toby for a couple hours in between picking him up from the Camp Tawonga bus and dropping Ben and me at Oakland Airport. After that Toby, otherwise known as Mr. Flexible and Good Natured, went on a whirlwind tour of friends and family staying with: the Boss-Talmans in San Francisco, Cousin Joel in San Francisco, the Nixons in Cloverdale, the Grovers in Oakland, and finally Nana in Oakland. I heard from him every other day or so. He missed me (us) but he did just fine and from all reports he was a good guest and fun to be around. I’m so proud of him. It’s a wonderful life skill to be able to go with the flow and be polite and accommodating and accepting of other people when you’re under some amount of stress (worrying about your brother and missing your family) for an extended period. Proud of you, Tobe.

Friends: Many, many thanks to those folks mentioned above who went out of their way to care for Toby, get him to his next caretaker, feed, clothe and entertain him, and in many ways ease my mind so completely that I had no worries about my baby. That was such a gift. Thank you all so so much.

More loving friends: To the many friends who drove way out of their way to come take care of me, of Mark and me, and Ben with goodies, companionship, and distraction during our two plus weeks here in LA: THANK YOU. You made this period almost feel like a vacation, and I so appreciate that.


Today we head back into LA to visit my lil’ sis, Jenn, and then off to the airport to return home. Looking forward to seeing my honey back at our lovely little rinky-dink Santa Rosa Airport, and all my boys back at Three Boys Farm (and yes, that includes our two cats, two mini-donkeys, and our horse). So glad to be returning with a hale, healthy and TALL middle boy. It’s been quite the time.

Wednesday, August 28, 2013

Ingredients for healing





Yesterday Ben and I drove into LA for his two-week post op visit with Dr. Cho. Twelve days since his spine was fused with two long titanium rods and 20 3” long titanium screws (and a few hooks thrown in for good measure). Yes, just 12 days since he became the owner of a 16" scar down his back.
 
And yet this boy was able to get in and out of the front seat of the car with ease. This boy traveled pain-free to and from the hospital, walked without assistance of any kind. Yes, this boy was doing so well, he even got on my case when I was overprotective (hey, I’m entitled).
 
Dr. Cho came into our examining room with an ear to ear grin. He had been on a vacation for the last part of our hospital stay so he’d had only reports (from his interns) to go on since he left. But what he’d heard was that Ben was a rock star: strong, healing fast, moving with confidence, low pain. AMAZING. Dr. Cho told us that Ben had bounced back faster, stronger and better than any fusion patient he’d ever seen. He’d blown away said interns. His pride and delight in Ben showed on his face.

He wanted to know our secret. What I told him was physical therapy. Ben’s been going to physical therapy for the past few years and it made a noticeable difference in his recovery from his surgeries right from the start. My belief is that, for kids who have repeat surgeries and limitations to be fully physical in their lives, physical therapy gives them a way to have a strong core, muscle flexibility and strength, and a positive self-concept. I am strong. I can do this. When you’re a kid going in and out of surgeries, like Ben was, well, then those kinds of messages can do wonders for the brain and the body.

Dr. Cho was impressed. “I think I may have to start prescribing that for my patients,” he said. “I think there’s a research paper in there.”

What I didn’t mention to Dr. Cho were some other ingredients in Ben’s success which have occurred to me only now.  

There's meditation. He's been meditating for the past couple years and I know he was meditating in the hospital, post op, blowing the physical therapist away when he told her that.

And there's his sense of humor. Ben told me he was cracking jokes with the doctors as they wheeled him into the OR, indeed continued to crack them up with stories as they were starting to put him under. That is some kind of grace under pressure, right?

But the biggest things have got to be the huge love and support from family and friends. I’ve told you of our hand-holding. I’ve told you about Ben and Mark and their amazing connection. But, I truly can’t emphasize enough how every microsecond of attention that we’ve been there for our boy has made a difference for him. Every spontaneous hug, every hand-holding moment, every incredible conversation I've had with him during these quiet days of rest and recuperation have been healing blessings for Ben (and for me, as well). Lack of stress = opportunity to heal. We were truly changed by this unfettered space and time for him and with him.

An example of the screws in Ben's spine.
Last night, after the hospital visit, we were talking about some folks we know who have no contact with their parents. Ben reached out for my hand (he still is wanting my hand to hold) and our eyes met. "Can you imagine that?" I said. "Only talking to each other once a year or never?" Ben, eyes very wide, very very wide, looked straight at me and shook his head slowly. "I don’t ever want to have a time like that with you, Mama," he said.

We have been so lucky to have been surrounded by love and compassion, so that we could give Ben exactly what he needed: Us. While we’ve been here in LA we have experienced the grace of loving kindness from strangers and family members and friends from many years gone by. The loving embrace and care of these people has made all the difference for us, made it so we could have the space (emotionally, physically, financially) to be right there for Ben as long as he needs us, made it so we can not worry about anything but healing and moving forward.

More to come with a gratitude list tomorrow morning, before we head for home.

Monday, November 12, 2012

Mark and Ben



Ben gets ready for a poker game in the Children's Hospital PICU with Cousin Yosef, Daddy, and Uncle Barrett. The game went late but the nurses were so happy to see Ben happy that they let the guys stay one hour past Visiting hours. March 2006.

“Being deeply loved by someone gives you strength, while loving someone deeply gives you courage.” ~Lao Tzu

Ben and Mark went off to Philly again today. Thursday he’ll undergo his 11th surgery.

Sigh.

This is a minor surgery. This is a lengthening of the 17” titanium rod nestled in Ben’s back. In May, at his last lengthening, Dr. Cahill thought he hadn’t gotten much adjustment, but surprisingly achieved a 16 degree correction. In the time intervening, Ben's spine went right back to where it had been, about 55 degrees. Who knows what will happen this time? But, both Ben and I have a feeling this is the last lengthening and the next surgery will be the Big One. Fusion.

More on that later.

What I really want to tell you about is Mark and Ben.

In 2006, Ben, age 8, went into Children’s Hospital, Oakland for brain surgery and Mark insisted that he would be the parent at bedside. It was only going to be a week. I would stay at my mom's house about five minutes from the hospital. Little did we know what that would mean long term. 

What does it take to be that parent, the Hospital Parent? Mark holds his feelings in (which has it’s downsides, but in the hospital isn’t such a bad thing), can wake up and go back to sleep easily, isn’t squeamish, is good with technology, and stands his ground. He won the round. He was the best choice for HP.

As Ben’s one surgery turned into four and his one week in the hospital turned into two months, Mark learned to sleep in a hospital, which is not so different from a war zone. He spent 40 days and 40 nights at Ben’s bedside at CHO. He slept cramped onto the most uncomfortable chair bed. He was at Ben’s side during terrifying and painful nighttime procedures, he was there to chase away nurses who were insistent on bothering Ben. He was there to notify them when the IV bag seemed to have a different antibiotic in it than before…and yep, he was there when they hurriedly changed said bag for the right one. When Ben's monitors would beep and wake them up, Mark could fix that beep, he could figure out a malfunctioning monitor faster than the nurse could get there from her station. When Ben was confined to his bed and had to "go" Mark would hold the pee bottle. Together they watched ridiculously inappropriate TV (Family Guy and the Simpsons and Blazing Saddles). But most importantly, he was there, without fail, for his son in the hardest of all times we could imagine.

Ben is incredibly lucky. All of our boys are, of course. Mark is an amazing father. He is reliable and loyal and honest and generous. He’s also hilarious, brilliant, and loving. He’s responsible and dependable and clever, too. And he’s unfailing the best dad and husband I know. Yes, we are all lucky to have him.

But from one surgery to the next he has forged a connection with Ben that is unique to the two of them. Because of the difficult path Ben has to walk in his life, Mark has had the occasion to sleep at bedside many more nights at Shriners Hospital in Philadelphia, where Ben is treated for scoliosis. (You can read about it here, here, here, here and here.) He also is there with him in the hotel, where Ben recovers before returning home. The beds are without question more comfortable and the bathroom more luxurious at the Ritz. But the work is essentially the same: care unhesitatingly for his child who is in pain…again.

Years ago, after Ben had done something (now hilarious in retrospect) out of line (run away to a neighbors backyard to jump on their trampoline or cut his hair to the quick or escaped from the house to toddle down to the major busy street, you know, something like that!) Mark called his mom to tell her, “Mom, I just want you to know Ben is my payback.” She reportedly laughed for ten minutes at that. Mark was not the easiest child. His basic rule of thumb was: “Don’t ask. If you ask they’ll say no. Just do it.” And yes, that is exactly how Ben thinks.

Ben and Mark are both pragmatic. They are strategic. They have sophisticated, sarcastic senses of humor, but are also moved by stories of compassion and kindness. Lest you think Ben is hard-nosed, you should know that he loves young children and animals, is, in fact, a magnet for both. Mark is one of the few men I’ve ever known who loves babies. He loves holding them, changing diapers, cuddling them. He even loved waking in the night to hand them to me for a feeding. He was never impatient for our own babies to grow up. He would have breastfed them, if he could.

For the past seven years Mark has demonstrated one aspect of his devotion to his family by being the Hospital Parent. He holds that safe space for Ben keeping the storm at bay. Mark is there for Ben like an anchor. No matter how violent the wind and waves, Mark is security. You will not float away. You will survive this.

The first time they traveled without me I was beyond anxious. It was the first time I had not been at Ben’s side when he was wheeled into the OR. It was the first time I wasn’t with my baby as he headed into another life-or-death experience. The night before that surgery Ben called me from Philly. “Mama,” he said in a voice that sounded much younger than his 12 years. “You have to come be with me. You have to get on a plane right now and fly here so that you can be with me in the morning. I can’t do this without you.” That call chilled me. What could I do? I looked at Harry and Toby, their faces pulled with worry over their brother. Technically, I couldn’t fly there anyways, it was too late. But honestly, I couldn’t leave my other boys one more time, either.

When Ben returned from that trip he said he never wanted to do that again, travel for surgery without his mama. But, by the time the next one rolled around, he couldn’t imagine going through a surgery without Mark at his side. We can’t afford financially for both parents to go, and we can’t afford emotionally either. Someone needs to stay home with Toby and Harry. A choice needs to be made. Bring Mama who will potentially faint at the sight of an exposed surgical wound? Bring Mama who wears her emotion out in front, cries easily and…is your mama…making it possible for you to cry easily, too? Nope, better to bring Dad, the guy with all those hospital bedside skills and who keeps the mushy stuff tucked down deep inside.

Ben and Mark now have their routine, their rituals for their time in Philly. On the way to the airport they stop in Chinatown for dim sum take out to devour on the plane. While in Philly they visit Reading Terminal Market more than once for pulled pork sandwiches or Thai food or other streetfood delicacies. They watch Comedy Central, all the raunchy stuff I’d never stomach, they both love. And now, since Mark is Ben’s math tutor, they’ll work on Algebra and Biology homework as well. (Is that a downside...taking your tutor with you?)

If you saw them on the way to Philly, you’d never know they were heading to another surgery. They’re two peas in a pod. They're both flirting with the cute babies on the plane.They’re laughing and joking and side by side playing games on their phones or iPods.  Ben has grown up with Mark during these trips. Their bond is obvious.

Mark had a very strong tie with his own dad. It was not complicated or overly emotional. Mark didn’t question it, their connection was a given. Many of Mark’s incredible qualities as a father and husband are behaviors he learned from watching his dad, and some, like with Mark and Ben, seem to just be innate character traits. And that love of babies? That's something Grandpa Norman passed to his son and grandson. Such a lovely trait in a man.

What Ben and Mark have is so deep and so critical. Mark has gone to the cliff with Ben now so many times that Ben has known repeatedly the raw love Mark has for him. Ben’s most important role model has shown him unswervingly what commitment is, what love is, what a father does for his child. It is a powerful gift. And I know this: it will carry Ben through life.

Sunday, October 21, 2012

And Noah Waited



This past weekend I attended my synagogue's biannual Women's Retreat. I was on the planning committee, I led all the music for services and I delivered the "drash" or sermon at Saturday morning's Shabbat service. It was a heartfelt weekend. The community we build at these retreats sends ripples out in my life. I will write more about the experience in a future blog post, but for now, here's my drash. The theme for the weekend was "liminal moments" and the Torah portion for the week was Noah (Genesis 6:9-11:32).  
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“And to make an end is to make a beginning. The end is where we start from.”
~ T.S. Eliot

Last weekend I celebrated my 50th birthday. If you’ve already hit 50 then you know how it feels to get there. If you haven’t, then you may think it sounds terribly old…I will say that, at least for me, there is something about it, something different. I felt that difference as my past year unfolded. It was as if the whole year preceding that 50th birthday was a kind of preparation. The many moments of introspection, of new perspectives, of fog clearing away (and believe me, as a women in menopause, the fog clearing away is no mean feat)…all of these seem to have led me to that day and then ushered me into this place I am now: the beginning of the next half century of my life!

The Torah marks the 50th year as a Jubilee year. “…and you shall hallow the fiftieth year,” it says in Leviticus. “That fiftieth year shall be a jubilee for you: you shall not sow, neither shall you reap the aftergrowth or harvest the untrimmed vines, for it is a jubilee. It shall be holy to you: you may only eat the growth direct from the field.”

The 50th anniversary is a golden anniversary and coming into last weekend’s celebrations for me, felt like a golden time, a golden moment. A liminal moment.

The concept of a liminal moment is popular in anthropology. Liminal moments can take many forms, but in general they are thresholds, thresholds for individuals, groups, entire civilizations. These moments can take place in a breath, an hour, a day or an epoch. Twilight is a liminal moment of time that comes every day, being born is a liminal moment that comes only once in each person’s life. A war is liminal for a country, or many, an “aha” moment is liminal for an individual who has just seen the light.

Rites of passage are liminal moments, as they mark the end of one period and the beginning of the next. We, in Judaism, have many and I’ve long felt that we are quite fortunate to be a people who still values the power of a ritual or a rite of passage to mark the various milestones in life, most importantly the bar/bat mitzvah, which marks the end of childhood and the beginning of adulthood, something that is lost to our general assimilated modern society but which is so wise and can be so profound. Havdalah is also a liminal rite, and quite meaningful in a world that has blurred the lines between the sacred and the secular.

I had never heard the term “liminal moment” before Rabbi Kramer brought it up at a Women’s Retreat Committee meeting last spring. I had never heard of it, but I had studied it for years. I am fascinated by liminal moments. I am quite interested in that period of “in between” that exists during transitions, a time that might stretch for months or years, with no apparent end in sight. Perhaps I am intrigued by these because I’ve encountered them so often in life and found the living through them to be so excruciating. Being in the moment when the moment is agonizingly painful, confusing, frightening, hopeful, electrifying, full of possibility, or even boring is an immense challenge. Changes seem to occur at these crossroads creating whole new paradigms in our lives. Imagining all the possibilities as we await the threshold-crossing-moment is oh-so-difficult. The unknown is a hard companion to sit with.

How was it then, for our hero Noah, the focus of our Torah portion this week? How did he manage to be within that twilight space…after the edict to build the ark, to collect the animals, to call together his sons and their wives… after the 40 days and nights of rain…after all that but before the next phase had begun? How did he manage to sit with the unknown?

“The ark drifted upon the waters” the Torah tells us. The entire earth was covered with water. As far as the eye could see. And “[o]nly Noah was left, and those with him in the ark.”

Only Noah was left, and those with him in the ark.

How quiet was it?

How terrifying?

All the turmoil that had come before, wiped out, obliterated by an extremely powerful and fed up God, fed up with the sins of mankind, but who chose to save one righteous individual, Noah, and his family. All that chaos that came before: GONE.

And then the water and the quiet. And the waiting.

I’m not talking about what the Lord said to Noah. I’m not talking about the floody-floody. Or the muddy muddy. I’m talking about the period in between when it was months and months of waiting for the storm to calm and the waters to recede.

Noah must have experienced that liminal moment as a man, a husband and a father, but also he experienced it for all humankind, did he not? He was our representative on Earth, living in that twilight moment, waiting to find out what comes after God’s mighty meltdown.

William Bridges, says in his book Making Sense of Transitions, that transitions involve 3 phases:
1)    an ending, followed by
2)    a period of confusion and distress, leading to
3)    a new beginning

If, in the first phase, you don’t acknowledge the ending, says Bridges, you can’t move forward toward a new beginning. A transition, then, is a very special thing. It begins with an ending.

Reading this on the tail of the first stories of Creation, we might think of Noah’s story as the “end of the beginning.”

The end of the beginning.

Bridges also says, “We have to let go of the old thing before we pick up the new—not just outwardly, but inwardly, where we keep our connections with the people and places that act as definitions of who we are.”

Did Noah, looking back at the chaos from whence he came, did he think of it in that way? Did he take store of humankind’s sins and consider how he and his offspring would move forward to create a better world? Or, did he suffer in the silence, anxious about whether or not God would truly spare him after all this, the ark, the cubits, and the animals two by two? All the definitions Noah had were gone.

“The ark drifted on the waters” of what we might think of as a Neutral Zone, a place with no place and no time and no definitions.

As Noah and his crew floated out there, somewhere (who knows where?), they embodied that Neutral Zone for all humanity. It’s Phase 2 of Bridges’ transition triumvirate, “…a strange no-man’s land between one world and the next…,” “…a low pressure area…a vacuum left by the loss…” During this period of waiting, this confusing and disorienting time, what did Noah think about? How did he feel? Was he afraid? Was he lonely?

In her book The Beginning of Desire:Reflections on Genesis, Scottish contemporary Torah scholar Avivah Gottleib Zornberg says that [in Noah] “…for the first time we are given a sense of human loneliness, as time is endured, as Noah waits for something new to begin…” and that Noah “prays to be saved from the prison of the his ark.”

“Noah,” she says, “like every faithful man,” prays to be saved from the “rushing mighty waters” [shetef mayim rabbim]; the undifferentiated dumb violence of the world just outside the prison of the ark. The prison is both the closed space of the ark and the too-great openness of the wild raging silence beyond.”

Just about seven years ago my family embarked on an odyssey when our middle son, Ben, then just 8 years old, was diagnosed with Chiari malformation type I. At his eight year well doctor’s visit he bent over for the scoliosis check and the sight of a huge lump (actually a hump) on his back caused me to literally leap up out of my chair. What came next were x-rays and MRI’s, urgent doctors appointments, calls and emails to everyone we knew for information about hospitals and neurosurgeons. Less than two months later we were sitting in the cafeteria at Children’s Hospital, Oakland while he underwent brain surgery for 10 hours.

What I didn’t know then was that that was the end of the beginning. We were entering a very long period of transition, one we still inhabit.

Those first months as we moved to the head of the class finding out more than you would ever want to know about brain surgery and cerebellar tonsils, those first months were only the tip of the iceberg of our period “floating on the waters.”  What was supposed to be a veritable “walk in the park” by neurosurgery standards became two months at his ICU bedside watching the doctors scratch their chins in puzzlement as he would not heal and would not heal...and would.not.heal. He endured four surgeries in those two months, though he was only supposed to have the one. He endured many more painful and frightening procedures during that time: needle pokes and blood draws, huge sticky bandages pulled off (quickly or slowly, it did not matter), stitches made without anesthesia. And I stood by, blowing cool air on his face, holding his soft little hand in mine, guiding his mind with images of Hawaiian beaches to calm him or superheroes to give him strength, organizing poker games for him with his loving uncles and dad, urging him to smile with ridiculously inappropriate TV and movies. It was a period of twilight for me, and I would agree with William Bridges’ assertion that time slows down in that zone.

What I didn’t know then was that because of the Chiari and the fluid pocket that had formed in his spinal cord, his spinal nerves had been compromised and the scoliosis he was left with would be severe. And require more surgeries.

Today, we still drift in those waters. They have not cleared as yet. In about three weeks Ben will head to Philadelphia with my husband, Mark, to have his 11th surgery, at Shriners Hospital for Children. He has been getting treatment there for the past three years, treatments that have held off spinal fusion and allowed his spine to continue to grow, but that have required him to spend more time in the hospital, more painful procedures, more time away from home. Within his back he has a 17 inch titanium rod and 5 staples. We have no idea when all this will end, or what it will end with.

Last summer, as we were approaching his 9th surgery I felt somehow that I just couldn’t take it anymore. I was so drained, physically, emotionally, mentally, spiritually from the never-endingness of it all. Ben was drained too, and that of course was HUGE for me. Ben was suffering from bouts of depression and anger and his constant back aches caused my own back to ache and my heart to ache, as well.

But, last summer I was standing out by my pasture, breathing in the cool morning air and I was perseverating on it all. When would it end? What would happen to Ben? Where had my happy, healthy boy gone? What was it like to not be constantly worrying about a sick child? I was finding it incredibly hard to just be with my life, sit with the unknown. And then it hit me: This is your life. Be in it. Be in it right now.

That “aha” moment, or as I like to think of it, My Moment of Zen, really helped. It helped me accept the truth and to live in it with not only the courage to deal with it, but the courage to see that the only thing that I could do was stay in the present moment and accept it. The past needed to be let go. The future was on the other side of the threshold.

I believe it’s quite necessary to survive the liminal moments that feel like an eternity. I believe it’s important to look to the future, to imagine what will be. But I also believe that it requires great courage to stay with the pain and the fear and the racing heart in the moment, the moment that may be dark or foggy or so terribly unclear. It is within those moments that we have the potential to uncover the truth about who we are, what we are made of, and possibly even why we are there.

And then, there are times when we don’t find out the whys until long after the transition is past. Looking back on events in our lives is when we can count the blessings or see what we learned from that very taxing teacher.

And so, what about Phase 3? The new beginning?  What about after the floods receded and Noah threw open the doors of the ark to let the sun shine in? What then?

I can imagine that it was not easy to take the next step, down the gangplank, to the damp soil of Mt. Ararat. The Torah says “God spoke to Noah, saying, "Come out of the ark, together with your wife, your sons, and your sons' wives. Bring out with you every living thing of all flesh that is with you: birds, animals, and everything that creeps on earth; and let them swarm on the earth and be fertile and increase on earth." It might have been an obvious direction. But, perhaps, God noticed Noah’s hesitation. After all that waiting, after all that time spent on the waters, walking through that doorway might not have been anything short of Noah’s most courageous move.

According to Aviva Gottleib Zornberg, “What Noah experiences when he is released, is the subtle gratitude of one who now realizes the implications of where he was and where he is. The history of Noah is, then, the history of man’s first exercise in self-construction. Between the worlds of kindness and ecstasy, between closedness and openness," she says, "Noah reads and interprets the test of God’s words and of his own heart.”

“We come to beginnings only at the end,” William Bridges tells us, “…changed and renewed by the destruction of the old life-phase and the journey through the nowhere.”

Have you ever walked from one room to another, on an errand to pick up something but by the time you got there you had no idea what you had come for? Did you know that psychology researchers have a name for that? It’s called “the doorway effect” and what they have found is that walking through a doorway causes you to have a lapse in short-term memory. According to the Scientific American, “walking through a doorway is a good time to purge your event models because whatever happened in the old room is likely to become less relevant now that you have changed venues.”

How interesting.

And we have learned that liminal moments also seem to involve that same loss of memory, or what could be seen as a death. One definition I found said: “a liminal moment involves a metaphorical ‘death’, as the initiand is forced to leave something behind by breaking with previous practices and routines.”

We can view our lives as a linear series of chronological events and as circular, beginning leading to in-between leading to ending leading to in-between leading to beginning again. The seasons of the year are this, the cycle of water from particles in the atmosphere to rain to raging waters of a river to the vapors over the ocean are this as well. The holiday of Simchat Torah is a ritual we Jews have to acknowledge the cyclical journey we take through the lessons of the Torah every year, unrolling and rolling, reading, singing and dancing our love for the book we cherish.

Noah’s time spent drifting upon the waters came to an end with a beginning, a new beginning for humanity. After many, many months drifting there in that no-time-no-place the waters finally drew back, the land finally dried out and marching off the ark they all came, to begin again.

Today at 50, I am all that I was before I arrived here at this new phase in my life. I am the consummation of my experiences, the thresholds I have crossed, the pain I have felt, the mistakes I have made and the joy I have shared. The course of my life has meandered along like a river’s course and I can sit with the events the way they have unfolded, knowing that they have brought me to where I am today. No regrets, just gratitude.

In his book The Way of Transition, William Bridges says, “You can talk about transition in either context. In the linear context, it’s the segue between one life-segment and the next, as well as being the process that disengages us from the first phase, turns us around, and plugs us into the second phase. In the circular-journey context, transition is an analytical way of talking about the journey itself.”

I suppose that’s the key for me: the journey. I have always been less interested in the destination than I have been in the journey. My personal journey, Noah’s journey, the journey of humankind.



Monday, July 2, 2012

:: right now ::

Maurice was impressed with the size of the onions at our local farmer's market.
 
right now I am...

:: enjoying  getting to know our 15 year old foreign exchange student, Maurice, who is staying with us this month. He is a delight: bright, witty, enthusiastic, willing, and open. His English is excellent and he loves video games! What more could our family ask for?

:: basking  in the sweet afterglow of two teen boys returned from a week of meditating and getting real with themselves. The conversations we've had...aaaahhh...sweet!

:: watching  said boys turning into spectacular young men.

:: digging  into some serious creative sewing using the book Do-It-Yourself Clothing Design by Cal Patch. My first attempts last week (with A-line skirts) turned out beautifully and I can't wait to get started on the second project!

:: gathering  food to make our 3rd of July picnic. We have a glorious down-homey celebration here in town the night before the big day. We'll be showing Maurice the Big American Holiday, Sebastopol-style!

:: feeling  the gratitude for a bountiful life, a beautiful place to live in, and much, much love around me every day!


Tuesday, November 22, 2011

feeling blessed

I participated in an Interfaith Thanksgiving service at my synagogue tonight. I was part of the planning committee and was asked to play my guitar and sing and to speak on the topic of gratitude for the blessings in our lives. Following is what I wrote and read. I'm dedicating it to my friend Svetlana.


My sons and I enjoy playing a storytelling game when we’re in the car on long drives. It’s called Fortunately/Unfortunately. You take turns going around the group, each person adding a sentence to the tale. It goes something like this:

First person: There once was a kid who had to walk to the library.

Next person: Fortunately, he lived only a block away…

Next person: Unfortunately, it was an extremely long block…

Next person: Fortunately, he only had one book to return that day…

Next person: Unfortunately, it was a huge book with about 1,000,000 pages…

You can see how it goes. Fortunately/Unfortunately. Your fortune can turn on a dime. This game reminds me of a wonderful Zen story, you can find it in this book, Zen Shorts. It’s the same idea, a tragedy befalls a farmer, and his neighbors say “Such bad luck!” and his response is, “Maybe.” Then, something good happens because of it and his neighbors say, “Such good luck!” and his response is, “Maybe.” As you find out in the story, your perspective can definitely change your experience of life.

It was raining the other night when I was thinking about perspective while I tried to fall asleep. It was raining, and it was a particularly cold night, and our heater had not been working in over two weeks, and winter was coming on. My nose was cold. The temperature in our house was 54 degrees!

I rolled over and grumped at my husband. I grumped and wished to be warm and complained and felt oh so sorry for me. Me and my cold nose in my house with no heat.

It’s easy to get negative. It's easy to look around and notice what’s wrong in your life. We all have something to complain about. Aches and pains, someone suffering whom we love, the heater’s broken again, the internet’s too slow. And then there’s the world with all of its aches and pains and suffering.

Very recently I made a discovery that if I shift my focus, if I take a different perspective, I can release myself from some of the burdens I carry around. I suppose it’s one of those lessons I need to learn over and over again. It’s not earth-shattering, it’s very simple.

I decided to say to myself: This is your life. Be in it, be in it right now.

I don’t say: Enjoy it. I don’t say: Count your blessings. I don’t say: It’s not so bad or It could be worse. There’s no judgment. I say: This is your life. This is it. Your life isn’t yesterday and it isn’t tomorrow. It’s happening now and you need to be present for this moment.

Six years ago my family was hit by a tidal wave of what some might call misfortune, but what I would call Life. My father-in-law passed away very suddenly, a month later we had to move into the house my husband was building earlier than expected, and a month after that we found out our 8 year old middle son needed immediate brain surgery. That would have been enough, enough to keep most people busy. But then the recovery didn’t go well, there were complications and infections, spinal fluid leaks, several more surgeries and ultimately, 40 nights in the hospital, mostly in the pediatric ICU.

Months later I’d look back at that extraordinary experience, the days and nights in the hospital, the four surgeries, the months away from my other children, and I would find myself feeling very blessed. It was odd really. My lovely little boy had gone through something truly excruciating (we all had) and I felt wrapped in golden light. Throughout that grueling time we had been surrounded by friends and family. People we loved and people we barely knew had come to hold us, to be with us, to give us food, to give us a break, to tell us their stories and to tell us we were in their thoughts and prayers. I felt such gratitude for being held in that way. I had never felt quite so blessed before in my life.

You might wonder how we got through that difficult time and all I can tell you is you do what needs to be done. If ever there was a time in my life I needed to be present, that was it. Of course, I did worry about the future, especially for my son, but my focus got incredibly tight: Be in your life right now, right this instant. Don’t look away.

The day after we had finally returned home I sat in our loveseat in our not-quite-finished new house with my two younger sons on either side of me. Ben, my middle son, was 8 and Toby, my baby was 5. We sat there, right next to each other, with a big pile of books and I read to them for hours. We were all so relieved, so content, so good just being there together on the couch with our books and our bodies snuggled up next to each other. I remember thinking: This is all I need.

So the other night, when I rolled over and grumped at my husband about my cold nose in my house with no heat, I could have gone on. But, I stopped myself. I told myself: This is your life. Be in it, be in it right now. I changed my perspective and my focus. Electric blanket, wool socks, roof over my head, loving husband, happy kids. Blessings one and all.